Scott Brady
Founder
NOTE: THIS IS A PRESS RELEASE FROM EXPEDITION AWARENESS. EXPEDITION PORTAL HAS NO ASSOCIATION WITH THIS ORGANIZATION
PRESS RELEASE
Overland group announces project for ALD.
Adrenoleukodystrophy and Early Childhood Screening Awareness.
Wichita Falls, TX, April 25: Expedition Awareness, a charity based overland expedition organization, announced today that their first project to raise awareness for Adrenoleukodystrophy and early childhood screening for the
disease. Adrenoleukodystrophy, or ALD, is a genetic disorder affecting 1 in 18,000 boys. There is no cure and very little in the way of treatments. It is a devastating disease that usually takes the life of the child within two years of becoming symptomatic. A 1992 film, “Lorenzo's Oil” offered some insight into the disease.
Expedition Awareness was founded by Phil Golden and Chris Nash. The mission of the firm is bring about a more proactive approach to finding a cure or viable treatment through awareness and fund raising. Golden and team have joined forces with the ALD Foundation (Slidell, LA) and believe they can make a difference. They hope to capture the spirit of adventure and use it to spread their message.
“This project started out as an idea that just snowballed into reality.” Golden stated when asked if he ever suspected such an overwhelming response to the idea. “When I found out my unborn son had the potential for contracting the disease, my buddy Chris and I began work immediately.”
Golden's son was at risk for the disease as it is a hereditary disorder passed from the child's mother. Golden's wife was adopted and much of her family medical history was unavailable to them. Testing confirmed that first his wife was a carrier and later his son was predisposed. He is currently asymptomatic.
The Expedition will begin at the US/Mexico border and criss-cross the Continental Divide all the way to Banff, Canada. The northern route is 95% off-road. Until very recently the guys are planning to take two specially modified Jeeps and are pulling two highly modified off-road trailers. As it turns out Golden will be completing the expedition solo due to Nash's unforeseen family and work commitments. “This is bitter sweet since Chris will be running base camp now and frankly I am glad he will be in charge back home. Having said that, a journey like this can be quite
dangerous and however appealing the idea of solo adventure is, there is no denying the potential for the unforeseen such as breakage, injury, sickness, and fatigue.” Golden stated.
Contact: Phil Golden
Expedition Awareness
Wichita Falls, TX. 76310 EXPEDITION AWARENESS
EXPEDITION-AWARENESS.ORG
OVERLAND GROUP ANNOUCES PROJECT FOR ALD. PAGE 2
The number of Expeditioneers has changed but the route is staying the same.
When asked about the route, Golden had this to say. “The CD (Continental Divide) route is amazing. We have it
mapped to the exact GPS turn. We will be above 5000 feet altitude over 80% of the time. I have a friend in the dual sport world that has shared his coordinates with us. But even the Tarmac has a lot to offer once I head east. “ Nash added, “And Phil will be heading east from Banff. He will point his Jeep and trailer to Brooks, Canada and then on to Winnipeg where we will turn south back into the US. From there he will make his way to New Orleans, La to present the ALD Foundation with our gifts.”
The team is setting aside nearly 2 months for the entire trip. However they feel confident they can beat that deadline.
Golden will be stopping along the route to share their message with pre arranged media appointments, sponsor receptions, and any one else that will listen. He will have satellite communications and tracking equipment on board allowing anyone to follow their progress and check in for daily updates.
In addition to their marketing campaign, the guys are also filming an adventure documentary of the entire project. In fact, filming has already begun. They intend on distributing their work to the ALD Foundation at no cost so that the foundation may give it to affected families. They have also made arrangements to have the film screened in a Shreveport, LA film house and by a prominent production company.
Golden is taking several cameras that have been used in similar productions including SurvivorMan, Long Way Down, and many others.
“I want to capture the essence of the trip in such a way that anyone interested in overland travel, camping, adventure,
off-roading, or just ALD will want to watch it. Think of this project as 2/3'rds adventure and 1/3rd education. I do not want another stuff shirt documentary that will only bring further distress to ALD families. I want something that puts smiles on faces.” Golden said about his newly coined “adventurementary”.
The team has many planned functions before the actual expedition takes place (May, 2011) including exhibitor shows, meet-n-greet functions, special appearances, and shake down runs. Nash closed with, “We just want to make a difference. It only takes one person to do that and we need to find them.”
Golden added as he cleared the obvious discomfort from his throat, “What would you do if your child was facing such an oppressive monster? The answer is everything you could. Hug your children. Never take a moment for granted.”
To learn more about their project and how you can help, visit: http://www.expedition-awareness.org. You can follow
their website, blog, Facebook, or Twitter
PRESS RELEASE
Overland group announces project for ALD.
Adrenoleukodystrophy and Early Childhood Screening Awareness.
Wichita Falls, TX, April 25: Expedition Awareness, a charity based overland expedition organization, announced today that their first project to raise awareness for Adrenoleukodystrophy and early childhood screening for the
disease. Adrenoleukodystrophy, or ALD, is a genetic disorder affecting 1 in 18,000 boys. There is no cure and very little in the way of treatments. It is a devastating disease that usually takes the life of the child within two years of becoming symptomatic. A 1992 film, “Lorenzo's Oil” offered some insight into the disease.
Expedition Awareness was founded by Phil Golden and Chris Nash. The mission of the firm is bring about a more proactive approach to finding a cure or viable treatment through awareness and fund raising. Golden and team have joined forces with the ALD Foundation (Slidell, LA) and believe they can make a difference. They hope to capture the spirit of adventure and use it to spread their message.
“This project started out as an idea that just snowballed into reality.” Golden stated when asked if he ever suspected such an overwhelming response to the idea. “When I found out my unborn son had the potential for contracting the disease, my buddy Chris and I began work immediately.”
Golden's son was at risk for the disease as it is a hereditary disorder passed from the child's mother. Golden's wife was adopted and much of her family medical history was unavailable to them. Testing confirmed that first his wife was a carrier and later his son was predisposed. He is currently asymptomatic.
The Expedition will begin at the US/Mexico border and criss-cross the Continental Divide all the way to Banff, Canada. The northern route is 95% off-road. Until very recently the guys are planning to take two specially modified Jeeps and are pulling two highly modified off-road trailers. As it turns out Golden will be completing the expedition solo due to Nash's unforeseen family and work commitments. “This is bitter sweet since Chris will be running base camp now and frankly I am glad he will be in charge back home. Having said that, a journey like this can be quite
dangerous and however appealing the idea of solo adventure is, there is no denying the potential for the unforeseen such as breakage, injury, sickness, and fatigue.” Golden stated.
Contact: Phil Golden
Expedition Awareness
Wichita Falls, TX. 76310 EXPEDITION AWARENESS
EXPEDITION-AWARENESS.ORG
OVERLAND GROUP ANNOUCES PROJECT FOR ALD. PAGE 2
The number of Expeditioneers has changed but the route is staying the same.
When asked about the route, Golden had this to say. “The CD (Continental Divide) route is amazing. We have it
mapped to the exact GPS turn. We will be above 5000 feet altitude over 80% of the time. I have a friend in the dual sport world that has shared his coordinates with us. But even the Tarmac has a lot to offer once I head east. “ Nash added, “And Phil will be heading east from Banff. He will point his Jeep and trailer to Brooks, Canada and then on to Winnipeg where we will turn south back into the US. From there he will make his way to New Orleans, La to present the ALD Foundation with our gifts.”
The team is setting aside nearly 2 months for the entire trip. However they feel confident they can beat that deadline.
Golden will be stopping along the route to share their message with pre arranged media appointments, sponsor receptions, and any one else that will listen. He will have satellite communications and tracking equipment on board allowing anyone to follow their progress and check in for daily updates.
In addition to their marketing campaign, the guys are also filming an adventure documentary of the entire project. In fact, filming has already begun. They intend on distributing their work to the ALD Foundation at no cost so that the foundation may give it to affected families. They have also made arrangements to have the film screened in a Shreveport, LA film house and by a prominent production company.
Golden is taking several cameras that have been used in similar productions including SurvivorMan, Long Way Down, and many others.
“I want to capture the essence of the trip in such a way that anyone interested in overland travel, camping, adventure,
off-roading, or just ALD will want to watch it. Think of this project as 2/3'rds adventure and 1/3rd education. I do not want another stuff shirt documentary that will only bring further distress to ALD families. I want something that puts smiles on faces.” Golden said about his newly coined “adventurementary”.
The team has many planned functions before the actual expedition takes place (May, 2011) including exhibitor shows, meet-n-greet functions, special appearances, and shake down runs. Nash closed with, “We just want to make a difference. It only takes one person to do that and we need to find them.”
Golden added as he cleared the obvious discomfort from his throat, “What would you do if your child was facing such an oppressive monster? The answer is everything you could. Hug your children. Never take a moment for granted.”
To learn more about their project and how you can help, visit: http://www.expedition-awareness.org. You can follow
their website, blog, Facebook, or Twitter
